Working Towards Justice & Genetic Health Literacy in Clinical Genomics

Working Towards Justice & Genetic Health Literacy in Clinical Genomics

Wednesday, May 22 | 11 a.m. ET | Virtual

Speakers:
Dr. Janeth Sanchez, PhD, MPH
Program Director for Health Equity at National Institutes of Health

Dr. Janina Jeff, PhD, MS
Bioinformatics Scientist at Illumina and Host of In Those Genes Podcast

Join the UNC Program for Precision Medicine in Health Care (PPMH) for a seminar and panel about working towards justice and genetic health literacy in clinical genomics and the complexity of supporting informed decision making by members of vulnerable or marginalized groups.

To learn more and register, visit the event page. Please note: Registration is required for this seminar.

Carolina Seminar Series | Precision Medicine Research and Novel Clinical Offerings: Ensuring Equitable Impact Through Implementation Science

Precision Medicine Research and Novel Clinical Offerings: Ensuring Equitable Impact Through Implementation Science

Wednesday, December 6 | 4 p.m. ET | Online

Speakers: Caitlin Allen, PhD, MPH
Assistant Professor, Medical University of South Carolina

Elizabeth Mayer-Davis, PhD, RD
Boshamer Distinguished Professor of Nutrition and Medicine, UNC-Chapel Hill

As technologies and health interventions expand at a rapid rate in healthcare, many providers and patients desire quick and efficient incorporation of these new offerings in to practice.  The field of implementation science can be critical in studying the barriers and facilitators to bring options previously available only in the research realm to the clinic. The design and development of health interventions are increasingly informed by implementation science theories, models, and frameworks to emphasize diverse reach and improve adoption and increase health equity in under served and marginalized communities. By testing new clinical offerings with implementation science methodologies, we can improve the quality of health practices for all patients while promoting equity and inclusion and ensuring that the availability of novel clinical offerings does not exacerbate existing health disparities.

To learn more and register, visit the UNC events page.

Please note: Registration is required for this seminar.

Clinical, technical, and environmental biases influencing equitable access to clinical genetics/genomics testing: A points to consider statement of the American College of Medical Genetics and Genomics (ACMG)

Posted on by Alexis
Dena R Matalon, Cinthya J Zepeda-Mendoza, Mahmoud Aarabi, Kaitlyn Brown, Stephanie M Fullerton, Shagun Kaur, Fabiola Quintero-Rivera, Matteo Vatta; ACMG Social, Ethical and Legal Issues Committee and the ACMG Diversity, Equity and Inclusion Committee

Working Towards Equity in Genomic Medicine: A Clinician-Investigator’s Perspective Lecture

Monday, November 7 | 3-4 p.m. ET | Virtual

As part of the NHGRI’s Genomics and Health Disparities Lecture Series, Dr. Kullo will discuss his research on the genetic basis of lipid disorders and the future of genomic medicine in his talk, “Working Towards Equity in Genomic Medicine: A Clinician-Investigator’s Perspective.” Learn more and register on the NHGRI website.

Speaker:
Iftikhar J. Kullo, M.D.
Professor of Medicine
Department of Cardiovascular Medicine
Mayo Clinic College of Medicine and Science

Race, Society, and Genetics Virtual Seminar

Monday, October 31 | 12-1 pm ET | Virtual

Virtual seminar: Race, Society, and Genetics

Speaker: Marwa Elnagheeb, MPH, Senior Coordinator, Clinical Genome Resource, UNC Chapel Hill

Seminar abstract: Interactions between race, society, and genetics have played a major role in health disparities and inequities across the world. This presentation examines the history and definition of race, sources of human genetic variation, the lack of a biological basis for race, and career paths in genetics.

About the speaker: Marwa Elnagheeb graduated from the University of North Carolina at Chapel Hill with a B.A. in Biology and a Master’s in Public Health. While at UNC, Marwa’s research has focused on three areas: (1) the impact of genetic variation and epigenetics on differential responses to adverse perinatal exposures, (2) the effects of maternal host nutrient status on infectious disease development, and (3) the role of socioeconomic factors in maternal and child health disparities. Marwa is a member of the Berg Lab at UNC and works with the Clinical Genome Resource as a Senior Coordinator to guide expert panels in determining the clinical validity of gene-disease relationships and pathogenicity of variants.

Join the seminar on Zoom.

The Biology of Health Disparities: Ancestry-Driven Drug Discovery

Thursday, October 6, 2022 | 2-3 p.m. ET | Virtual & In Person (Bethesda, MD)

The Division of Intramural Research (DIR) sponsors a monthly series of talks by intramural and special guest speakers celebrating genetics and genomics research. Speakers are selected by NHGRI intramural faculty and trainees and cover research topics of interest to a wide audience. All seminars are free and open to the public.

“The Biology of Health Disparities: Ancestry-Driven Drug Discovery” seminar will be delivered by guest speaker:

K. Sean Kimbro, Ph.D.Portrait of Dr. Sean Kimbro
Professor, Department of Biomedical and Biological Sciences
Director, Integrated Bioscience Ph.D. Program
JLC Biomedical Biotechnology Research Institute
North Carolina Central University

Registration is required to attend the Zoom meeting. Learn more about this event and others in the series on the NHGRI website.