A new manuscript from the IGNITE Pragmatic Trials Network has been published in JAMA Network Open, describing the primary results of the GUARDD-US study. GUARDD-US is a randomized controlled trial examining the impact of returning APOL1 genetic risk results to ...
Thursday, February 16 | 3:30 - 4:30 p.m. ET | Online & Bethesda, MD C. Jimmy Lin, M.D., Ph.D., MHS is the Founder and Chief Executive Officer of Rare Genomics (RG) Institute, an international non-profit founded in 2011 to enable any community to leverage cutting-edge biotechnology to advance understanding of rare diseases. Dr. Lin is […]
Monday, February 27 | 9 a.m.-4:45 p.m. ET | Online The U.S. Food and Drug Administration (FDA) will host Rare Disease Day, a virtual public meeting, on February 27, in global observance of Rare Disease Week. This year’s theme is “Intersections with Rare Diseases – A patient focused event.” Participants will have the unique opportunity […]
Thursday, May 18 | 10 – 11 a.m. ET | Online Rapid advances and decreasing costs of human genome sequencing technologies are accelerating the integration of genomics into clinical practice. Although genomic sequencing has demonstrated utility as an indication-based diagnostic tool for certain diseases, the full potential of DNA sequencing for population-level screening is yet […]
Monday, June 5 - Friday, June 9 | Online Genomics is becoming an increasingly important part of patient care, but healthcare providers may not be aware of genomics education resources that are available. The National Human Genome Research Institute and its partners are organizing a social media campaign from June 5 to June 9, 2023, […]
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