A new manuscript from the IGNITE Pragmatic Trials Network has been published in JAMA Network Open, describing the primary results of the GUARDD-US study. GUARDD-US is a randomized controlled trial examining the impact of returning APOL1 genetic risk results to ...
Wednesday, September 28-Thursday, September 29 | 1-5pm ET | Virtual
The theme of this year’s Midwest Genetics Network (MGN) virtual Annual Meeting is “Raising the Bar: Building Authentic Relationships”. Over the course of the two day meeting, attendees will dialogue about how to develop and sustain meaningful engagement with stakeholders and other partners to promote the best possible outcomes for individuals living with genetic conditions.
The keynote speaker for the event is Abner Mason. Abner has spent decades working to reduce barriers to care faced by underserved people nationally and internationally. As the founder and CEO of SameSky Health, he leads a team of diverse professionals who strive every day to improve outcomes and lower costs on behalf of health plans.
The conference will also include a panel discussion of Rare Disease Advisory Councils (RDACs) in MGN’s seven state region. RDACs are advisory panels that give the rare disease community a stronger voice in state government and are supported by NORD.
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