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SUMMARY:Leveraging Genomics to Address Health Disparities in Rare Diseases and Cancer Screenings
DESCRIPTION:Thursday\, February 16 | 3:30 – 4:30 p.m. ET | Online & Bethesda\, MD \nC. Jimmy Lin\, M.D.\, Ph.D.\, MHS is the Founder and Chief Executive Officer of Rare Genomics (RG) Institute\, an international non-profit founded in 2011 to enable any community to leverage cutting-edge biotechnology to advance understanding of rare diseases. Dr. Lin is also the Chief Scientific Officer at Freenome\, working on early diagnostic of cancers. Prior to Freenome\, he was the Chief Scientific Officer\, Oncology at Natera where he led the development of new diagnostic technologies for cancer. \nBefore his career in private industry\, Dr. Lin led the ClinOmics program at the National Cancer Institute (NIH/NCI) and was a research instructor at Washington University in St. Louis. Dr. Lin earned his MD and PhD from Johns Hopkins School of Medicine and a Master of Health Science from the Johns Hopkins Bloomberg School of Public Health\, creating genome-wide maps of breast\, colorectal\, pancreatic\, glioblastoma\, medulloblastoma\, and melanoma cancers\, as well as mapping the genome of an anaerobic bacteria that is used as anti-tumor therapy. He is a 2016 Senior TED Fellow and a 2016 WIRED Innovation Fellow and has been featured in several media outlets\, including Forbes\, Bloomberg\, Wall Street Journal\, New York Times\, Washington Post\, BBC\, and TIME Magazine. \nRegister on the NGHRI Genomics and Health Disparities Lecture Series website.
URL:https://gmkb.org/event/leveraging-genomics-to-address-health-disparities-in-rare-diseases-and-cancer-screenings/
LOCATION:Virtual
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SUMMARY:Public Meeting: FDA Rare Disease Day
DESCRIPTION:Monday\, February 27 | 9 a.m.-4:45 p.m. ET | Online \nThe U.S. Food and Drug Administration (FDA) will host Rare Disease Day\, a virtual public meeting\, on February 27\, in global observance of Rare Disease Week. This year’s theme is “Intersections with Rare Diseases – A patient focused event.” Participants will have the unique opportunity to: \n\nHear directly from the FDA on initiatives to advance medical product development for rare diseases.\nEngage with the FDA to provide your perspectives as a patient\, caregiver or family member.\nUnderstand considerations and challenges associated with clinical trials in small populations.\nHear from medical students on rare disease education for medical professionals.\n\nLearn more and register for the event on the FDA’s website.
URL:https://gmkb.org/event/public-meeting-fda-rare-disease-day/
LOCATION:Virtual
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